ARI does not share data unless you authorize us to do so in writing.
If you have received an email from us about a research study, it means we are telling you about the study. We have NOT told the people running the study about you.
We have not given them your email or your data.
That said, we encourage you to participate in research. It is the only way we can help scientists understand autoimmune disease and ensure new treatments are developed for patients.