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Nov
27
6:30 PM18:30

The Autoimmune Research Reception

Please join us for the first Autoimmune Research Reception!

On Tuesday November 27th starting at 6:30pm, the Autoimmune Registry (ARI) will host a 1-hour program featuring Dr. Ecem Sevim, a visiting clinical research fellow at the Hospital for Special Surgery (HSS). Before and after the formal presentation, there will be a live demonstration of the Registry and you will have an opportunity to use the Autoimmune Registry to answer your own research questions. 

ARI is a network of patient registries representing all autoimmune diseases, providing a hub for research, statistics and patient data for all autoimmune diseases. Our goals are to reduce the time of diagnosis, support research, compute prevalence statistics, and establish autoimmune disease as a major class of disease so that it receives the awareness of the public, the attention of healthcare providers, and the appropriate funding needed to improve upon existing treatment protocols and disease management strategies.

*All attendees must Register for a Participant Ticket (no charge) or purchase a Donor Ticket for either $10 or $100 to help sponsor our work with researchers.*

The event will take place in the East Village neighborhood of Manhattan. Once registered, you will receive a confirmation email containing the specific address.

Additional donations will be accepted at the event as well as our online donation page. Donations in any amount would be greatly appreciated.

Program

6:30 – 7:00 

Welcome reception (wine, beer and hors d'oeuvres), live Registry demonstration

7:00 – 8:00 

The Patient Perspective by ARI Board member, Michael Craig

The Research Perspective by Dr. Ecem Sevim     

The Registry Perspective by ARI President, Aaron Abend

Q&A

8:00 – 8:30           

More time to interact with Dr. Sevim and other researchers and use the Registry

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Dr. Ecem Sevim

Dr. Sevim specializes in research on autoimmune diseases, including Antiphospholipid Syndrome (APS) and Systemic Lupus Erythematosus (SLE). At HSS, she has been closely working on the international APS registry which led to many outstanding research studies. Moreover, she is actively participating in the `Undifferentiated Connective Tissue Diseases and Overlap Registry`, investigating clinical and biological characteristics of these patients with the aim of identifying the factors that may predict clinical course. Additionally, she is involved in the creation of a clinic/registry for pregnant patients with systemic autoimmune diseases.

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