About Autoimmune Registry, Inc.
Autoimmune Registry, Inc., ARI, is a Connecticut-based 501(c)3 non-profit corporation founded in 2016 to create a hub for research, statistics, and patient data on all autoimmune illnesses.
We operate a national database for patients who suffer from any autoimmune disease. Our mission is to reduce the time of diagnosis, support research, compute prevalence statistics, and establish autoimmune disease as a major class of disease so that it receives the awareness of the public, the attention of healthcare providers, and the appropriate funding needed to improve upon existing treatment protocols and disease management strategies.
We also aim to become a trusted source where patients with these diseases can find credible, scientifically-supported information about their diseases, promising treatments in the pipeline, and accurate prognosis insights. Whenever necessary, we will redirect patients to our patient advocacy groups for further resources and information.
Aaron Abend - President
Disease of Impact: Sjogren's Syndrome
Aaron Abend is software entrepreneur with 30 years of experience in database development, the last 15 focused on healthcare and medical research. He was cofounder of Recombinant Data, a software company that implemented database technologies for academic medical centers... Read More
Michael Linn - Board Member
Disease of Impact: Relapsing Polychondritis (“RP”)
Mike Linn has over 25 years of operational, transaction and start-up experience in the investment management business. Prior to joining Varadero Capital as Chief Operating Officer in 2015, Mr. Linn played an integral role in the development of businesses at several investment management platforms... Read more
Ashley Boynes-Shuck - Director of Patient Engagement
Disease of Impact: Rheumatoid Arthritis, Celiac Disease, and More
Ashley Boynes-Shuck is a writer and patient advocate who has lived with several autoimmune conditions and dozens of other medical diagnoses since childhood. Known online as "Arthritis Ashley," Boynes-Shuck has devoted her adult life to being an activist and health coach for patients like herself... Read more
Jeff Green - Chief Technology Officer
Jeff Green studied computer science and engineering at the University of California, Irvine. He worked for small companies and large corporations over his 35-year career doing database and software application design, healthcare data harmonization and migration, and data analytics.... Read more
Zeba Hyder - Marketing Consultant
Zeba Hyder has 30+ years of Marketing experience with concentration in Global Digital Marketing in the Financial Services industry such as AIG where she was the Head of Digital Marketing.... Read more
Alice Sparks - Financial consultant
Alice Sparks has more than 20 years of experience in all aspects of human resource management, operations, and administration.
Alice has served in senior financial positions in the for-profit and non-profit sectors, including a daily newspaper, a private foundation, a juvenile detention facility, a substance abuse counseling facility and a special needs adoption agency. Alice earned an undergraduate degree in Health Administration from Florida Atlantic University and a Master’s Degree in Public Administration from the University of South Carolina.
ARI is committed to transparency in its organization and operations. Below are our organizing documents.