Autoimmune Registry's work with All of Us
The Autoimmune Registry is a proud champion of the National Institutes of Health’s (NIH’s) All of Us Research Program. With data from program participants, the Autoimmune Registry aims to transform how patients with autoimmune diseases understand and manage their health, providing them with critical insights that could lead to more personalized care and improved health outcomes.
What is the All of Us Research Program?
The All of Us Research Program is a national initiative led by the NIH, aimed at gathering comprehensive health data from one million diverse participants across the United States. This effort is one of the largest and most ambitious health research programs ever undertaken. By collecting a wide range of data, including genetics, lifestyle, environmental factors, and health outcomes, the program strives to create a more complete picture of health and disease.
All of Us works to make health research more inclusive by focusing on diversity—ensuring that historically underrepresented groups have a voice in the research process. Participants’ data, which is anonymized to protect privacy, is made available to researchers and advocates who are working to better understand complex health conditions.
How is the Autoimmune Registry Leveraging All of Us Data?
The Autoimmune Registry is using the vast resources of the All of Us program to gain deeper insights into autoimmune diseases. Our new website includes profile pages for 150 suspected and confirmed autoimmune diseases, using data and graphics to highlight the experiences of patients.
These insights include:
Top Comorbidities: Identifying common health conditions that often occur alongside autoimmune diseases.
Top Medications: Identifying top medications currently taken by patients with autoimmune diseases.
Patient Health: Highlighting patients’ self-reported general health and quality of life metrics.
Socioeconomic Factors: Recognizing socioeonomic factors that impact patients’ choices regarding care.
How Can You Get Involved?
The Autoimmune Registry’s work with the All of Us resource is just the beginning of a larger movement to improve autoimmune disease research and care. Patients with autoimmune conditions can participate in the All of Us Research Program by enrolling and sharing their health data.
Join the Autoimmune Registry to contribute to our registry’s collection of patient-reported data on 150 suspected and confirmed autoimmune diseases. By joining the registry, participants will receive updates about new research and other news on autoimmune diseases through our newsletters.