For many patients, the path to a correct diagnosis of autoimmune disease is a long one. Here we present stories of diagnosis from our participating members. Some are written by the members themselves, others by one of our volunteer writers. We hope these stories help everyone understand the difficulties that autoimmune diseases present to patients, the doctors trying their best to treat them, and the friends and families that support them. Autoimmune diseases are difficult to diagnose. Our goal is to change that, reduce the time to diagnosis, and get patients the right diagnosis and right treatment as quickly as possible.

Want to tell your story in video format? You can now make a video about your story and use it for your social media accounts or websites.

Getting a diagnosis during Covid

Therese’s Diagnostic Journey

“God, when we meet you are going to have to explain why I had to endure this.”

Russell’s Diagnostic Journey

A diagnostic journey from exhaustion to health

A Diagnostic Journey to a common autoimmune disease

A (mind) numbing journey to diagnosis

Christina’s Diagnostic Journey

A 22 year diagnostic odyssey

Lori Sadowski’s Diagnostic Journey

I Have Sjogren's.

Bexi Lobo’s Diagnostic Journey

What was your diagnostic journey? Listen to Darrison’s journey on how she received her autoimmune disease diagnosis.