The Autoimmune Registry hosts a monthly webinar to bring together patient advocacy groups related to autoimmune diseases. For this month, we invited John Muller, Founder of Getting Up, who will share his insights on the fundraising process and the operations of Getting Up.

Details: Thursday, January 22, 2026, from 12:00 to 1:00 PM EST

Agenda:

12:00 - 12:05 PM: Convene

12:05 - 12:10 PM: Introductions

12:10 - 12:40 PM: GettingUp.Org, A Volunteer-Powered Model for Rare Disease Impact

12:40 - 1:00 PM: Q&A

John Muller

Getting Up

Founder

John Muller is the founder of GettingUp.org, a nonprofit dedicated to raising awareness, funding research, and inspiring hope for patients and families facing rare conditions. Through his work, John bridges science and humanity—bringing together physicians, researchers, caregivers, and patients in the urgent search for new treatments.

GettingUp.org is a 100% volunteer-driven 501(c)(3) nonprofit founded to raise awareness, fund innovative research, and inspire hope for people living with rare diseases such as Inclusion Body Myositis (IBM). Through community events, advocacy, and education, GettingUp.org works to turn barriers into breakthroughs—empowering patients, caregivers, and researchers in the urgent search for better treatments and cures.

In Barriers to Breakthroughs, John blends personal experience with scientific exploration, weaving a narrative that is both deeply human and powerfully informative. His mission is clear: to ensure that dignity, resilience, and advocacy shine even in the face of daunting odds.

Never give up, never surrender!