Join us for an engaging and informative session co-hosted by the Autoimmune Registry, Inc. (ARI) and the Vasculitis Foundation, aimed at empowering patients and caregivers to navigate clinical trials confidently.

This event will offer valuable insights into the critical role of clinical trials in advancing new treatments and provide practical guidance for those considering participation.

Details: Monday, July 14th, 2025, from 1:30 — 2:30 pm Eastern via Zoom

Agenda:

1:30 — 1:40: Convene and Introductions of ARI and Vasculitis Foundation

1:40 — 1:45: Why are Clinical Trials important for vasculitis patients?

1:45 — 1:50: What are the ethics governing clinical trials?

1:50 — 2:05: What should you consider or know about clinical trials?

2:05 — 2:10: How to get involved in clinical trials if you are not currently seen by a physician at a clinical trial site?

2:10 — 2:20: Why is participation important?

2:20 — 2:30: Q&A

Joyce Kullman

Executive Director, Vasculitis Foundation

Joyce Kullman is the executive director of the Vasculitis Foundation (VF), an international advocacy organization dedicated to supporting individuals living with vasculitis. The VF collaborates with patients, care partners, healthcare professionals, researchers, and vasculitis experts and centers globally. Their mission is to facilitate earlier diagnosis, enhance patient care, and promote coordinated research efforts.

Kullman is actively involved in several key initiatives. She serves on the steering committees of the Vasculitis Clinical Research Consortium (VCRC) and the Vasculitis Patient-Powered Research Network. Her role in the VCRC included participation in the Coalition of Patient Advocacy Groups at the National Institutes of Health. Additionally, she is a member of the Public Advisory Roundtable of the American Thoracic Society and serves on the Patient and Family Education Committee.

Her primary focus is on raising awareness about vasculitis and improving the lives of those affected by the disease.

Ingrid He

President and Director of Research, Autoimmune Registry, Inc.

Ingrid previously worked as an attorney representing corporations, hospital organizations, and insurance companies in a variety of litigations, including medical malpractice and breach of contract claims. She received her JD and MBA degrees from Fordham University in 2012 and 2022, respectively.

She became a patient advocate in 2014 after being diagnosed with Sjogren’s disease. With her experience in the healthcare system as well as an undergraduate degree in mathematics, she went on to develop a symptom-tracking app for patients with Sjogren’s disease.  By joining the Autoimmune Registry, she hopes to bring the patient perspective to research projects and to develop symptom-tracking technologies that can help the research community better understand autoimmune diseases.