Join us for an engaging and informative session co-hosted by the Autoimmune Registry, Inc. (ARI) and the APS Type 1 Foundation, designed to promote education and awareness for patients to become more familiar with clinical trials and more comfortable with the idea of participating.
This event will offer information on the history of the APS Type 1 organization and the work it has done to facilitate clinical trials.
Details: Thursday, November 6, 2025, from 12-1 pm Eastern via Zoom
Agenda:
12:00 - 12:05: Convene
12:05 - 12:10: Introductions
12:10 - 12:40: History of APS Type 1 Foundation and its role in the clinical trials sphere
12:40 - 1:00: Q&A
Todd Talarico
President and Chair of the Board
The APS Type 1 Foundation Inc.
Todd S. Talarico, the Foundation’s President, Chair of the Board, and Co-Founder, works in the pharmaceutical industry, focused on product and patient market access. Todd holds a BS from Bloomsburg University, PA, and an MS in Healthcare Management from the College of Saint Elizabeth, NJ. Since his daughter was diagnosed with APS Type 1 in 2006, Todd has worked tirelessly to develop the Foundation by raising awareness of the disease, working with the NIH, and fundraising for research.
Robin Finch
Secretary and Board Member
The APS Type 1 Foundation Inc.
Robin Finch is a Board member and Secretary of the Foundation and the mother of seventeen-year-old, Samantha, with APS Type 1/APECED. Robin fundraises for the foundation through her family’s “Slam Dunks for Sam” community basketball events. She and her husband, Brent, hosted a benefit concert in February 2024 to raise funds for the Foundation. She spearheaded the creation of our registry and hopes to develop a bio-bank. Robin practices real estate law at Greenberg Glusker in Los Angeles, California, and holds a JD from UC Davis.
DAVID SEYFERT
Board Member
The APS Type 1 Foundation Inc.
David Seyfert, Co-Founder of the Foundation, is the father of Matthew, an Eagle Scout who is matriculating at Stony Brook University. Matt was diagnosed with APS Type 1 at age 6. David holds masters degrees in Special Education and Orientation and Mobility and has worked with students with visual impairments for over 35 years. David and his wife, Sherri, ran the APS Type 1 Basket raffle to raise money for research for 10 years.