Living with social isolation and joining the Smart Patient Community (Copy)

Researchers at the University of Cambridge are conducting groundbreaking research to better understand patient experiences of flares in autoimmune diseases.

To take part, you need to complete a survey which asks about how you define flares in your disease, what triggers and prevents flares and the order of symptoms in flares. It takes about 45 minutes to complete, and you can pause or stop at any time.

Everyone who takes part can choose to be entered into a prize draw to win one of four £50 amazon vouchers when the survey closes, which will likely be in late June.

Please click on this link https://bit.ly/4kOQeyg to take part.

If you have any questions, please contact Martha Piper on mp2196@cam.ac.uk or Melanie Sloan on mas229@medschl.cam.ac.uk.

This study is part of the INSPIRE project, which is led by Dr Melanie Sloan, who is a rheumatology patient as well as senior academic. Her team includes senior rheumatologists, Prof David D’Cruz and Dr Arvind Kaul, and is well-known as leading the way in fully involving patients as research partners and changing care through the work they publish. This is only made possible by your involvement is studies such as this.

Please see below for some recent relevant articles they have published with your views and experiences:

Prevalence and identification of neuropsychiatric symptoms in systemic autoimmune rheumatic diseases: an international mixed methods study. https://doi.org/10.1093/rheumatology/kead369

Telemedicine in rheumatology: A mixed methods study exploring acceptability, preferences and experiences among patients and clinicians. https://doi.org/10.1093/rheumatology/keab796

To support the Autoimmune Registry, please share our information with others who have autoimmune diseases. Donations are also greatly appreciated!