Last week, we posted a Facebook poll results from our Multiple Autoimmune Syndrome group, providing the percentage of votes for each symptom. In that email, we also shared a link to fill out a survey on diseases, symptoms, and medications, and the results are in! With the survey, we can link the symptoms to individual survey IDs and their reported diseases.
Based on 196 anonymous surveys from patients that reported over 65 different autoimmune diseases, 147 reported having more than 1 autoimmune disease. The most common autoimmune disease reported in this survey is Sjogren’s disease, followed by Hashimoto’s or autoimmune thyroiditis, and rheumatoid arthritis. Below is a list of the diseases with the most counts.
Overall, the most common symptoms reported were fatigue, brain fog, and joint pain, with 83% of survey takers reporting fatigue, 69% brain fog, and 58% joint pain.
When it comes to medications, we found that 27% of patients are taking plaquenil, 8% methotrexate, and 6% Imuran, while 45% are not taking any type of disease modifying rheumatic medications (DMARDS). When it comes to Biologics, 56% reported never having tried this type of treatment, with the most common Biologic treatment received being Rituxan 14%, followed by Humira 10% and IVIG (Intravenous Immunoglobulin) 7.95%.
Do you have a question about the survey for your particular disease? Let us know and we will look up the information from the survey results.
With more members in our registry, we can generate these types of statistics on a larger scale. Please join our registry or share it with a friend who has an autoimmune condition. Donations are also greatly appreciated!
